Supporting families with Galactosemia
The Galactosemia Foundation
This non-profit organization advocates for people with Galactosemia and their families. The Foundation connects families and supports networking efforts between clinicians and researchers.
People living with or loving someone with Galactosemia can likely agree that it's important to take some personal time to rest and refresh before setting out on the next adventure. These resources can help you and your family recharge physically and emotionally.
Things to remember
Practicing self-care restores balance and focus, which can make you more effective in your daily life.
The Centers for Disease Control and Prevention (CDC) is a trusted source that can help you identify the milestones children typically reach as they grow.
For many families, the care community lifting up children and adults with Galactosemia includes teachers and healthcare providers from a variety of specialties. These resources can help everyone get on the same page.